Here he is probably wishing I would shut up! The big wean is on! Right now we are trying our best to wean Thomas off his g-tube and let me tell you, it’s a round-the-clock job. I think it is one of the hardest things I have ever done. It requires more patience than 20…Details
Tom is everywhere! You can find a picture of Tom and his speech language pathologist (SLP) hard at work together in the Spring/Summer Issue of Facets Magazine. Tom’s SLP, Sameera Dehaithem, is getting her clinical doctorate at the University of Pittsburgh and the University’s Publication for the School of Health & Rehabilitation Sciences wrote an…Details
Tom is scheduled for an Exam Under Anesthesia (EUA) tomorrow. It’s the best way to get a good look at the health of his eyes. They will be checking his glaucoma, retinas, optic nerves and measuring him for new contacts. We have been waiting for months to get this EUA done because his contact prescription…Details
Bye Bye Baby Pool! We are going to the beach. Tom is going to the beach next weekend, so let the planning begin! Just as I began thinking about this approaching trip I got an email from The Friendship Circle entitled, 70+ Tips and Tricks for Special Needs Road Trips. Just what I needed! Tom went…Details
I can do it myself! Last week we formally began the process for Tom to transition from in-home Early Intervention (EI) services to getting services through his own school district. Thomas currently gets a lot of therapy and we have to make sure he continues to get the services he needs to grow and develop.…Details
You are home alone, …or so you thought! Is that a sound in the basement? What could it be? You better go investigate.
Please watch and listen to the video below as Tom provides the appropriate musical accompaniment to this short scary intro.
Watermelon! Tom is enjoying this beautiful late Spring weather that feels more like Summer. His days are filled with his usual therapy and the warm weather joys of eating watermelon and playing with his splash table. He is in love with his splash table. He has no idea that big meetings are taking place this…Details