Tom is really beginning to enjoy books now that he has a little more patience. I could never get him to sit still before. It’s like once he started moving, that’s all he wanted to do. Now reading books together is an excellent way to get him quieted down for a nap or bed. I…Details
At home after 1st Glaucoma surgery Today, Tom went to the Children’s Hospital of Pittsburgh for another evaluation under anesthesia (EUA). If your child has visual problems then this word is probably VERY familiar to you. To get a really good examination of a child’s eyes they put them under anesthesia. I imagine it’s very…Details
The short is answer is yes. But I usually say that Thomas is visually impaired because he does have some vision and because I don’t want people to treat him differently. I fear that people will ignore him or interact with him less if I tell them he is blind. People often assume that blind…Details
Early Intervention is a program that helps children ages 0-3 who need help to grow and develop. We left the hospital after Thomas was born with a referral for our local Early Intervention office. Children that have a disability should be referred almost immediately for this program, but other kids may begin to have difficulties…Details
Thomas had his first eye surgery when he was two-weeks-old. When we left the hospital after the infection check, we left with an appointment to come back for another surgery in a month. For us, every surgery was an opportunity to establish some vision for Thomas. Dr. Capone is one of the few surgeons who…Details
Thomas attends a playgroup at the Western Pennsylvania School for Blind Children (WPSBC) and tomorrow is his second session. The play groups let Tom socialize with other visually impaired children his age by participating in directed play. The sessions are run by a Teacher of the Visually Impaired and a Speech/Language Pathologist. Tom waiting patiently…Details
This is our aim. To teach Thomas to eat enough by mouth to grow. Now people get confused because they will see Thomas “eating” foods and they don’t understand why he needs a G-tube for feeding. Well he is not really eating them. Mostly he tastes the food and chews it up a bit, then…Details
We went to Detroit to see Dr. Capone based on the advice of a retinal surgeon who examined Thomas when he was five days old. Our local surgeon said that he felt comfortable doing the surgery but that if it were his son, he would take him to Dr. Capone. Well that’s all we had…Details
We have a tv channel that just plays concerts and music. Well it was on one day and Tom started singing along. This is him practicing singing with his Dad.
Here is the very popular video of him playing the ukelele.