Ollie’s Story: Part 2. We find out about his surgery and meet Ollie today! What struck me so vividly about the waiting room was how these families were from all over the world and they all somehow managed to find Dr. Capone and Dr. Trese. These were little babes from Bosnia Herzegovina, Italy, India, the…
Details
Today we have a guest post: Ollie’s Story! Unlike our usual question and answers, Ollie’s mom Mimi wanted to share the beginning of Ollie’s story. It sounds so much like the beginning of Tommy’s story to me. Look at this amazing, adorable little boy and learn more about his start. I love to have the…
Details
Our family was invited to a party on the 4th of July. We are new to this neighborhood and thought it was cool of our neighbors to invite us over. We hoped it would be an opportunity to meet more people on our street. It was a great night! The weather was unusually cool and…
Details
The internet is my first resource for most things, and it’s probably yours too. As the parent of a child with special needs, I use the internet for information, support, and just to find people who understand. Most of the people I know in real life know nothing about tube feeding and blended diets, or…
Details
This Thursday was Tom’s first trip to the amusement park! We were really nervous but hopeful that Tommy would have a good time. Tom loves motion. (One of his first words was go!) He loves elevators and escalators so I thought riding some “kiddie land” style rides could be something he would enjoy. I mean…
Details
I was blown away when I saw an old picture of Tommy plastered to the elevator at his school. He looks so tiny as he reaches out to touch the texture book. He even still has a pacifier in his mouth. He must be about two years old. I remember taking him to his first…
Details
It’s the end of school for this year! It was another great year with Miss Jenn, Miss Rhoda, Miss Gift, and all of his therapists. Tom has a fabulous team at school and it shows. He wants to go to school and he comes home talking about the things he did and learned there. Lately…
Details
My big guy is now riding the bus to preschool! His first day was a little rocky but now he’s doing great. Riding in the car has not always been a favorite activity of Tommy’s. When he was a toddler he absolutely hated it and I spent lots of time trying to hand him toys…
Details
Yesterday Tommy had another eye evaluation under anesthesia. We have this done about once or twice a year so they can get a good look at Tom’s retinas, check his glaucoma pressure, and finally, they measure his eyes and figure out the power for his contacts. He used to have EUAs four times a year…
Details