Tom has 5 surgeries and a couple of EUA’s (evaluation under anesthesia) with retinal surgeon, Dr. Capone. I would really not trust anyone else to ever touch Tommy’s retinas. We have had his glaucoma surgeries here in Pittsburgh, but Tommy’s eyes are incredibly altered due to his many surgeries and the severity of his PFV (persistent fetal vasculature). People travel from all over the world to see Dr. Capone and Dr. Trese at Beaumont Hospital in Royal Oak Michigan when their children have complex retinal detachments. They see a large volume of infants and children with retinal diseases so they have a great amount of experience to draw from.
Check out this interview with Dr. Capone, from the Vision Aware blog by the American Foundation for the Blind and Reader’s Digest Partners for Sight.
I have met many doctors due to Tom’s complex medical conditions. Dr. Capone is one of the nicest I have met. He was never short with us, he explained the surgeries, and the limitations of those surgeries in detail. I really appreciated his approach. The best is that he always treated Tommy like a child, and us like parents. A little kindness goes a long way!
Want to read about Tom’s diagnosis and his initial surgeries?
And yes, if you are in need of a retinal surgeon, Dr. Capone is my recommendation!
And here is Tommy today!