Tonight Tommy was getting his nightly shower and his Dad was helping him out. As his Dad was helping him get into his pajamas, Tommy said something. His Dad thought he said something like “eyes hurt” and was worried he’d gotten some shampoo in Tom’s eyes during the shower. So Tom’s Dad asked him, “Did you say your eye hurt?” And Tom replied, “orange shirt.”
Dramatic pause…. The pajamas are orange. They are brand new and he’s never worn them before. It was a christmas gift and I had pulled the tags off just before setting them out in the bathroom.
So Tom’s Dad asked him again, “what did you say?” Again, Tommy replied, “orange shirt.”
This is a very interesting development. Is it a coincidence or can Tom see color? We don’t want to get too excited when this could be nothing, but his comment definitely shocked his Dad and I. We don’t make any special efforts to mention color at home, but some of the kids in Tommy’s class have vision so they do talk about color in school.
It would be cool for him to be able to experience and understand color. We have been told that the bit of light perception Tom seemed to have had probably been lost. His glaucoma was really hard to manage from 14 months of age to about the time when he was two and a half. It took three glaucoma surgeries, two drainage implants, and many EUAs to get it under control.
His pressures have been well controlled for a long while now, but we assumed that most of the gains he got from his vitrectomy surgeries had been lost through glaucoma damage. In recent testing at school he did not react to light. In testing at the doctor’s office in the fall he did reach for the doctor’s light tool (I have no idea what that thing is called… anyone know?) in a completely darkened exam room.
Who knows what the story is. We will just have to wait and see if this type of thing happens again. It could just be an amazing coincidence. Or maybe Tommy is psychic! Lottery wins here we come!!!!!!!!!!
One note: While it would be cool for Tommy if he could see color he is still functionally blind and will always be a braille reader and cane user – and that’s fine. We love him just as he is!