Thomas has Persistent Fetal Vasculature Syndrome. You can find out more about this disease at ROPARD, the Association for Retinopathy of Prematurity and Related Diseases. I can spend hours looking at the collection of helpful links they have on this site.
The Blind Childrens Center has an excellent collection of publications that are reasonably priced. I just found this site and can’t wait to order some. They have books on feeding, movement development, preschool and social play, speech, and more.
American Foundation for the Blind and the National Association for Parents of Children with Visual Impairments.
Check out Wonderbaby for lots of information on raising blind children. So many great ideas can be found here.
Parents should check out the Congenital Glaucoma Network for support and information.
National Federation of the Blind – This organization is blind people working to help other blind people. They know what they are talking about and offer amazing support and services. I have mentioned both their Free White Cane Program and their Early Explorers Program in blog posts.
Make sure you subscribe to Future Reflections magazine! I look forward to each and every issue. It is a quarterly magazine published by the American Action Fund for Blind Children and Adults in partnership with the National Organization of Parents of Blind Children. Most of the articles are written by parents and the subjects are all the daily living and life choices we face as parents of blind children. I learn something from every issue. The message is always one of hope and possibility for all blind children. You can get a print copy by emailing ParentOutreach@nfb.org (Put subscribe to FR in the subject line.)
The Hadley School for the Blind – Hadley offers free, distance education courses and seminars for parents, grandparents and other family members of visually impaired children through their Family Education Program. Contact them toll-free: 800-323-4238. Sign up for their email newsletter.
Braille Institute’s – Child Development Downloads for Parents. Awesome ideas and information can be found here. They cover language, sensory, fine motor skills, environmental adaptions and even instructions to make simple toys!
VICurriculum.org – The Maryland School for the Blind’s website for Preschoolers. Be sure to check out the Activities for Home and Tips from the Trenches.