That’s right. We are trying to get better but it’s been really hard. Tom was home two days last week with his grandparents and one day with me. I took him to the doctor on Thursday where we found out he had an ear infection and a sinus infection. He started on Augmentin on Thursday…Details
I’ve been working on the resource page of the blog and trying to fatten it up with really useful sites. I have added some of my favorites and I have tons more I could add. (Anyone want to pay me to do this blog? Then I’d have time to really curate some resources!) I added some…Details
Remember Tommy’s friend Ava who helped us try out the Perkins SMART Brailler? She entered the first ever White House Student Film Festival sponsored by the Department of Education. As Secretary Arne Duncan of the U.S. Dept of Education said, “The very best person to talk to about how modern technology is changing our classrooms…Details
It is Rare Disease Day and that makes me wonder if Tom is Rare? Tom is blind due to a retinal disease called Persistent Fetal Vasculature Syndrome. Only about 10% of infants affected by PFVS have it bilateral like Tommy does. Tom’s symptoms are close to a disease called Norrie’s disease but genetic testing and his…Details
Tommy is a kid with many nicknames and he just got another – the Sandwich King! Tom’s eating is really coming along lately. Some days he gets only one bolus of hydration and eats everything else by mouth. Sometimes on the weekends, we have a g-tube free day! I had a moment to speak with…Details
It’s Feeding Tube Awareness Month! The more people know and understand tube feeding the better. It is just another way to eat when you can’t eat by mouth. In Tommy’s case he wouldn’t eat by mouth so he got a g-tube placed just before his first birthday. It’s a shocking thing to see your child…Details
The Walt Disney Magnet School in Chicago is launching a $40,000 3D printing lab. Okay, that’s cool. But guess what else they want to do with their 3D printers?
This school also plans to assist students at other schools. In particular, Disney is hoping to work with blind students at another school to teach ten to read braille. Students at the magnet school would create objects with accompanying braille labels, creating a new tactile learning system including the representations of the objects and their braille counterparts.
That’s great! 3D printers are going to be an integral part of education for people who are visually impaired. Being able to print out a tactile representation of an item or perhaps a diagram or geometry problem will make learning much more accessible and fun for people who are blind or visually impaired. If I could read a book and then 3D print objects for tactile learning it would make books so much more meaningful to Tommy.
But I want the school to do more than help the blind students. I want them to share the 3D printer lab with the students who are blind. Help by teaching and letting everyone participate in this revolutionary technology. Don’t just make children who are blind into a service project for other students. Let them learn together! Read more in 3D printing Industry.
Some toys are great for Braille labeling and Tom’s VTech Alphabet Apple is a perfect example. The large buttons light up very brightly so kids with CVI might like this toy too. The buttons are large enough that I can put APH Braille letter stickers (note: the APH calls them Feel n’ Peel) on each…Details
I don’t think I mentioned it on here yet but we are building a new house! That sounds like something only fancy people do, but we found an affordable, local builder that we really like. And after updating a 1950s fixer-uper we are so done with remodeling jobs. Tom is in love with “new house.”…Details